Living With 5

Keeping Independence _ Despite the challenges of living with DMD, it is possible to have a productive, creative, and fulfilling life. In fact, more and more young adults with DMD are attending university, pursuing rewarding careers and having families of their own. As DMD progresses, a variety of lifestyle adjustments and adaptive technologies can help […]

Living With 4

Telling Others About DMD: How To Make It Easier _ Telling your friends and family about DMD can be daunting, but it is a vital part of the coping process. Once people close to you know, they can serve as strong pillars of support. While there is no right or wrong way to break the […]

Living With 3

Why Education Is So Important _ School teaches children independence, provides them with opportunities to learn and helps them meet friends – skills that will enrich their entire lives. Adjustments at school You can divide support networks into both formal and informal types—and you should make use of both: Most children with DMD can attend […]

Living With 2

Getting the Right Support _ A DMD diagnosis can turn your world upside down, but you do not have to go through it alone. Family, friends, doctors, nurse, therapists and online communities can all serve as great pillars of support and comfort to fall back on in difficult times. Types of support You can divide […]

Living With 1

Living with Duchenne Muscular Dystrophy (DMD) _ Overview A DMD diagnosis is devastating—but it doesn’t have to defeat you or your child. People live productive, creative, and fulfilling lives with DMD. More and more young adults with DMD are attending university, pursuing rewarding careers and even having families of their own. To help your child […]