Diagnosis 4

Dealing With the Diagnosis _ If your child or young person DOES have DMD: Resources and therapies are available to help manage symptoms and possibly slow down the progression of the condition. If your child or young person DOES NOT have DMD: Your doctor will do more investigations into what else could be causing symptoms. […]

Diagnosis 3

What Will the Doctor Do to Diagnose DMD? _ How DMD is diagnosed Confirming signs and symptoms If Duchenne muscular dystrophy (DMD) is suspected, the first thing your family doctor will do is perform a physical exam to check for muscle weakness. They will also ask about delays in early developmental milestones, such as sitting, […]

Diagnosis 2

When is the Right Time to Talk to a Doctor? _ Helping your doctor reach a diagnosis Take these three steps to prepare for the doctor’s visit and help them determine whether it is DMD or another condition; Helping your doctor reach a diagnosis Understanding your family’s history of muscle disease and other conditions can […]

Diagnosis 1

How Do You Know It’s Duchenne Muscular Dystrophy (DMD)? _ Only a doctor can make a DMD diagnosis. There are a specific set of steps the doctor will go through that will help them tell whether a patient has DMD. Doctors will look at: Signs and symptoms of DMD Results of a blood test for […]

Treatment 4

How Your Care Team Will Help You _ Receiving a DMD diagnosis is difficult, but you are not alone. There is an extensive care team available to DMD patients, and they will be able to offer information and support as you need it, so please reach out to them. Your DMD care team may include […]

Treatment 3

Duchenne Muscular Dystrophy (DMD) Supportive Care: What are the Options? _ Managing DMD takes more than just medication DMD weakens muscles in the entire body, so it can have very wide-ranging effects. This makes people with the disorder more susceptible to a host of complications.The best way to manage DMD is to try a combination […]

Treatment 2

DMD Medications: What Are the Options? _ Taking medicine can help protect the muscles and ease symptoms of DMD, even though they cannot cure the disease. Corticosteroids Corticosteroids the most-prescribed DMD treatment. Both the American Academy of Neurology (AAN) and the U.S. Centers for Disease Control and Prevention (CDC) guidelines recommend a special kind of […]

Treatment 1

Treatment Overview _ Early intervention is key to preserve muscles and mobility With early detection, a child with Duchenne’s Muscular Dystrophy (DMD), can get treatment to slow the progress of the disease. This means that your child or young person may stay mobile longer and live more independently and longer than they would without specialized […]

Living With 5

Keeping Independence _ Despite the challenges of living with DMD, it is possible to have a productive, creative, and fulfilling life. In fact, more and more young adults with DMD are attending university, pursuing rewarding careers and having families of their own. As DMD progresses, a variety of lifestyle adjustments and adaptive technologies can help […]

Living With 4

Telling Others About DMD: How To Make It Easier _ Telling your friends and family about DMD can be daunting, but it is a vital part of the coping process. Once people close to you know, they can serve as strong pillars of support. While there is no right or wrong way to break the […]